On Monday we had to start a 21 day supply of Omincef given 2x daily. We have to take 21 days because he has built up such a resistance to antibiotics standard amounts no longer work. Once we finish our 21 day supply we will have to go back to the Dr. for an X-ray and if there are still signs of an infection then we are back on another 21 day supply. Jacob hasn't been on antibiotics for 3 weeks and this is AMAZING for us.
Our current medications are:
and nasal wash
On Friday 4/17/09 we will do our weekly infusion of Vivaglobin.
He has tolerated the transfusions very well. He has very few side effects. The one thing we did learn early on is (1) don't premedicate with Motrin only use Tylenol (Motrin gave his severe headaches) (2) FLUID...FLUID...FLUID it takes 48 hours for your body to adsorb the Vivaglobin the more you drink the less likely to get headaches and abdominal cramps.
He is living the life of any regular 5 year old boy. He is in school, plays soccer and is an orange belt in Karate.