Well we got the results back from his most recent blood tests and his IGG levels are perfect. So we keep infusing the same amount weekly 16ML. We will go back and get his blood tested again in 6 months!
We just got back from Disney for the IDF Conference and what a bunce of great information we received. The best part about the entire conference is my son met another little boy the same age as him the receives the Vivaglobin also. He thought is was great to not be the only person it the world getting infusions.
The bad side of the Conference is it was at Disney so any and every "sick bug" was out and present so he is starting to get sick. He gets his infusion tomorrow so I hoping it will knock the "sick bug" out of his system!
Wednesday, June 24, 2009
Wednesday, June 10, 2009
June 10, 2009
We are still going strong over 1 month now infection free! Jacob got his blood tested yesterday, 6-9-09, we will see how his IGG numbers are in about 2 weeks.
His last infusion went very well no side effects and only took 1 hour 23 minutes. The infusion prior to that one May 29, he had horrible migrains that started on Monday around 5 pm. I kinda had a feeling he was going to get one because we didn't push him to drink on Saturday like we normally do. His Migrain was awful nausea, sensitivity to light and of course the headache part.
I gave him some Tylenol and he passed out on the couch. I woke him up 2 hours later to see if he wanted any dinner and to get him to drink. His head felt better but of course about 3.5 hours later the headache was coming back. He woke up Tuesday with a headache but not a migrain. He had a slight headache for the rest of Tuesday but by Wednesday it was gone! This infusion for some reason took 2 hours and 3 minutes to complete.
We are packing up and leave tomorrow for the IDF convention in Orlando. I know we are going to get a lot of information and Jacob is going to meet a lot of kids that goes through the same stuff as him.
I will update his current IGG levels when we get them.
His last infusion went very well no side effects and only took 1 hour 23 minutes. The infusion prior to that one May 29, he had horrible migrains that started on Monday around 5 pm. I kinda had a feeling he was going to get one because we didn't push him to drink on Saturday like we normally do. His Migrain was awful nausea, sensitivity to light and of course the headache part.
I gave him some Tylenol and he passed out on the couch. I woke him up 2 hours later to see if he wanted any dinner and to get him to drink. His head felt better but of course about 3.5 hours later the headache was coming back. He woke up Tuesday with a headache but not a migrain. He had a slight headache for the rest of Tuesday but by Wednesday it was gone! This infusion for some reason took 2 hours and 3 minutes to complete.
We are packing up and leave tomorrow for the IDF convention in Orlando. I know we are going to get a lot of information and Jacob is going to meet a lot of kids that goes through the same stuff as him.
I will update his current IGG levels when we get them.
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