Monday, April 4, 2011
It's been a long time since I have posted but Jacob has been doing very well. He has a few infections but nothing severe and most importantly we have been able to stay out of the hospital since June! His asthma been flaring up a little more than usual lately but with a few tweeks to his mediction and it appears to have gotten under control. His migraine headaches have finally started to subside. He was getting full migraines atleast once a week with all the classic symptoms. rough on anyone but especially a 7 year old. His doctor has drastically slowed down his infusion from 45 minutes to 2 hours. In the beginning we had very little change in the headaches but in the last 6 months they have started coming less and less. Also, a huge step this year is we finally (so far) have not gotten the flu OR RSV. I monitored the flu outbreak and held off on the flu shot until as late in the season as possible, since everyother year he had lost all his titers to the shot and got the flu in Feb. every year since he's been born. In June we go to the IDF seminar and I hope to have a lot more knowledge about the disease my son has.